July 29 – Emotional roller coaster

We headed to Iowa City today fully convinced they were going to tell us Tim needed a transplant and soon. (It was eluded to when the appointment was made.) When the doctor came in to talk to us, basically, the first thing they said was that they didn’t think a transplant was necessary at this time!! PTL!!!!!

It sounds like they made the appointment based on some blood tests that were done on June 10th. That was about 2 weeks after the start of Tim’s first round of maintenance chemo. That test showed that there was still some of the NPM1 mutation in his blood.

However, that was too soon after the chemo to be an accurate test. After seeing that the bone marrow biopsy on June 22nd showed NO signs of the NPM1 mutation, the doctors realized they had jumped the gun a bit. All that to say that we are still in the NO TRANSPLANT category!

From here, Tim has one more round of maintenance chemo which is scheduled to start August 18th. Then, sometime the week of September 21st, he will have another biopsy. If that test continues to show no signs of the mutation (or any new ones), Tim will be released to work shortly thereafter. He will continue to have blood tests every 4-6 weeks (with an occasional biopsy thrown in) for the next 2 years.

PRAYER REQUESTS:

That Tim’s bloodwork continues to show no signs of the mutation (or any new ones).

For our mental health. While this news is absolutely fantastic, we are emotionally drained from the roller coaster ride we have been on, especially the last week!

PRAISES:

Obviously, we are thrilled (and surprised!) by this turn of events. We have a good and loving Father who has been with us every step of this journey. Last night, as Tim and I discussed what we expected today was going to look like, we talked about God’s peace we had been feeling. Tim said that he still felt like he would be healed, even if it wasn’t here on Earth! We are thankful that, for now, God has chosen to bring healing here.

We are also thankful for all our prayer partners! We have been surrounded by a world full (literally) of people praying for us and we are humbled by it all. We thank each and every one of you that have been praying for us!!

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Comments

7 responses to “July 29 – Emotional roller coaster”

  1. Joy W. Avatar
    Joy W.

    Great news! 🙌

  2. Cheri Avatar
    Cheri

    Such good news! PTL
    Prayers will continue for these things.
    Don and Cheri

  3. PAM HOLTAN Avatar
    PAM HOLTAN

    So glad to hear this! PTL always….

  4. Dave Fatka Avatar
    Dave Fatka

    PTL!! Prayers are being answered for sure❤️

  5. Terri Olson Avatar
    Terri Olson

    Good news for sure! Hang in there you two!

  6. Jean Mallicoat Avatar
    Jean Mallicoat

    Wonderful update and so so glad to read this. We will continue to be praying for Tim, your family, Tim’s medical team, physical and emotional strength each day.

  7. Jeanne Wyatt Avatar
    Jeanne Wyatt

    Good news for sure! You and your family are still on the prayer list at the United Churches in Hot Springs, SD.

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