God is good….all the time!
Two days after being told “no transplant”, we received a disturbing test result in My Chart. One of the Iowa City blood tests said that the NPM1 mutation was present. Tim called Iowa City on Monday and talked with the transplant coordinator. She told him that she meets with the transplant doctor every Tuesday and would call him back Tuesday morning. We heard back today. They want us in Iowa City for more labs and another biopsy on August 18th.
Since that was the day Tim was supposed to start his next round of chemo, that is on hold for now. Iowa City is going to talk to the donor about a possible mid September transplant (in case one is needed). The results from the tests on the 18th will determine if a transplant is needed and donor availability will determine when.
PRAYER REQUESTS:
Tim is really struggling with mouth sores again. This is a normal side effect of chemo but tough to deal with. It makes it hard to eat and hard to talk. He did have a platelet transfusion on Monday, so hopefully, they will start to get better.
Obviously, prayers in the waiting. While we wait for the appointment on the 18th and while we wait for the results of the tests, which will take about a week.
If we are heading for a transplant, there will be lots of details to work out from how Cassie will be able to work remotely, to where she will be able to stay, to how we will cope with life for the next year to year and a half following the transplant. We know God is in control but there are still waters that will need to be navigated.
PRAISES:
Long term disability finally got approved!
Overall, Tim is still feeling pretty good. We were able to celebrate our youngest daughter’s 21st birthday yesterday with most of the family. If you can’t tell, family is very important to us and we know just how blessed we are to have our kids and grandkids so close by and to be able to see them so frequently.
All the time….God is good!
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