Category: Status Update

What a great day we had today. It was a beautiful day for Sarah’s graduation!! We want to thank everyone that has been praying from the beginning that Tim would be able to make it for her big day. A few photos from the day!

PRAISES:

Tim is being released today!!!!!!

His counts have been rapidly rising and he is able to be released today. Four weeks of being in the hospital! His brother Rob is there to help him pack up and head home. He is also going to be able to attend Sarah’s graduation! He has to take a few precautions but we did not think this would be possible even just a couple days ago! God had it all worked out though!! PTL!!

We will probably not be posting every day for the next couple weeks , so we encourage you to sign up for emails that tell you when we post. If you have any trouble with that, reach out!

Next up are a couple weekly visits to the clinic for blood draws. On May 18th we go to Iowa City for testing and then, provided all is going well, he will start maintenance chemo on May 26th. That will be 5 days of inpatient chemo to help things stay away while he is waiting for the bone marrow transplant. These chemo rounds are not as harsh.

We will continue to keep this page going and keep you all posted on his progress.

Huge shoutout to all the wonderful nurses who took such good care of us. To all the family and friends who visited, sent cards, wrote words of encouragement, and blessed us in so many ways. We can’t even begin to thank you enough. To our kids who have been there every step of the way. We love you all so much!

The journey is definitely not over. There is still a long road ahead but this section of the hurdles is over. We continue to run the race. Just running at a slightly slower pace for the time being.

This morning the Dr told us that Tim’s blood numbers were improving enough that he could be discharged tomorrow or Friday! We could hardly believe it. He MAY actually make it to graduation. 🤞

He has gone all day without having to be hooked to his IV pole. He took advantage of that and got in a couple walks for a total of 1 3/4 mile.

PRAYER REQUESTS:

Still having skin irritation issues and the drippy nose. His mouth sores are improving and we are told the other two should get better as his blood counts rise.

Getting discharged brings a whole new set of challenges. It is extremely exciting and scary at the same time. There are many things we will need to watch for and he will need to have clinic visits 2-3 times per week.

PRAISES:

That Tim might actually make it to graduation.

That his blood counts are improving rapidly.

Since today is Cinco De Mayo, we are celebrating the good news we received yesterday. Had a good conversation with the Dr. this morning regarding the next steps in Tim’s treatment too. He is also celebrating a nice new bed here at the hospital. Even has a Purple mattress!!

Tim had a nice visit with Timmy and Michaela’s pastor today. He brought Tim a Chipotle burrito bowl and Tim managed to finish the whole thing!! Talk about a Cinco De Mayo celebration!!

He got two half mile walks in today. Had a round of phosphorus and a few antibiotics but that was all. It’s nice that some of his medicines are starting to slow down a little. He is able to spend more time NOT hooked up to the IV pole and that is so freeing.

The Dr is thinking that Tim will be able to leave the hospital early next week (likely Monday). We are looking forward to a little normalcy in our lives. Then we have the appointment in Iowa City on May 18th. They will do another bone marrow biopsy that day and once the results are back, we will start the maintenance chemo (rounds of chemo for 5 days a month). He will likely do 2-3 rounds of those before the bone marrow transplant (or also called a stem cell transplant). These are just general timelines but it gives you an idea of what probably lies ahead for us.

PRAYER REQUESTS:

Tim’s skin and mouth sores are still quite an irritant as is the drippy nose. The nose is improving but slowly. It is very dry here in the hospital and that does not help with the dry, irritated skin.

Tomorrow I, Cassie, will be heading to Wayne, NE to spend a little time with our youngest daughter Sarah before her graduation this Saturday. Tim is already starting to miss me. His brother Rob will be staying with him during this time to help Tim be able to watch the livestream. Tim is disappointed to not be able to be at Sarah’s graduation.

PRAISES:

We are seeing steady improvement. It is slow, but steady. The Dr told us this morning that his blood numbers are also slowly but steadily improving also.

Words of encouragement from all across the country. The messages we receive are so uplifting. We cannot thank you all enough for them. They help us keep going!

Praise for our son-in-law Mitch and grandson Wells today. Happy birthday to them both!!

Today we learned that the first round of chemo killed enough that Tim doesn’t have to go right back into another round of chemo! PTL!! He could be released from the hospital in the next 5-10 days. Depending on when his numbers rebuild, he will have to come back for a second round of chemo but the timing of that all depends on numbers. We still have our appointment in Iowa City on May 18th also.

Tim was a bit more tired today. He needed more platelets, phosphorous, and potassium today. He spent some time in the rooftop garden enjoying the sunshine and got a couple walks in.

PRAYER REQUESTS:

Tim continues to struggle with digestive issues, mouth sores (which make it very difficult to eat), skin irritations, and a very drippy nose. Please continue to pray that these issues clear up.

Prayers that Tim’s levels will build and we can be released from the hospital. We have been here for almost 4 weeks and are ready to fly the coop!

PRAISES:

Obviously, we are praising God for the wonderful news we received this morning!

Tim enjoyed a better night of sleep last night than he has had for a few days.

Saturday was a BEAUTIFUL day and we had a wonderful time with our family celebrating our grandson, Wells, first birthday. Tim even got to indulge in a little pizza! We got some family pictures (see below) and even got to have a little family worship time before everyone had to head out. Despite Tim needing 2 blood transfusions on Saturday (he was a little tired), the nurses were wonderful and worked it out so one was basically done before the party and the second started after our worship service. He was able to be free of the IV pole for that whole time.

Today, several of us got to attend Cornerstone Church in Ames and watch Tate (our soon to be son-in-law) get baptized. It was a wonderful service!! Tim was able to watch the livestream and texted me after it was over that he got to watch the whole thing, uninterrupted. If you’ve ever been in a hospital before, you know that was a big deal!

Overall, Tim’s health is gradually improving. He is sounding stronger and his color is getting back to a more normal pallor. After the two transfusions yesterday, his energy level today is much better. He even got a mile walk in this morning after watching the service. His potassium was pretty low today, so they are giving him some meds for that.

PRAYER REQUESTS:

Tim started having a bloody nose last night. Because of that, they did a round of platelets. They do not want him blowing his nose as that can make everything worse. It is pretty miserable to continually feel like your nose is running and not be able to blow it. Please pray that will subside.

It is hard to force yourself to eat when you have no appetite. Please pray that he will be able to get enough food intake despite not feeling hungry so we don’t go backwards and end up on IV diet again.

All the washing and sanitizing is starting to take a toll on Tim’s skin. He is using some creams they have given him so prayers for that to help would be appreciated.

PRAISES:

For the wonderful day with family. It was such a blessing to be able to see everyone and have a time of worship together.

Hearing Tate’s testimony and seeing him get baptized. We are adding a wonderful young man to the family and we praise God for how He has blessed us with kids that are following the Lord!

Nurses who understand the importance of family time and even enjoy watching and listening to our family praise God. We have been truly blessed by the care we have received here!

Tim was able to enjoy most of the afternoon and evening free from the IV pole. He is transitioning from less IV”s to more pills again. A little scary but necessary steps towards the possibility of being released. While he was without “his friend”, he took two longer walks of about 3/4 of a mile each, showered without all the encumbrances, and even cut his hair (yes, he still has hair).

We now have an appointment scheduled with the University of Iowa. While there are still several things that may happen between now and then, it is good to have that set. On May 18th, we will head to Iowa City to have tests and be seen by the Dr’s there.

His food intake is still increasing but doesn’t take much to make him full, go figure! He is looking forward to a little pizza tomorrow with the family. SSSHHHHHHH!!!!!! 🤫

PRAYER REQUESTS:

That Tim is able to continue to consume enough calories to avoid IV nutrition.

While there are still many prayer requests we could mention, tonight we want to focus on the praises.

PRAISES:

That Tim seems to be making great strides. A week ago our son wrote about some pretty dark places we were walking through. Tonight, that seems like a very long time ago and for that we are ever so grateful. Not only to God but to all who have been beseeching him on our behalf.

Today I (Cassie) kept hearing songs that just reinforced God’s love and protection over us. Music is very important to both Tim and I and today God used it to speak to me!

For all the cards and words of encouragement. We have been taping the cards up on a door here in the room so we can look at them all the time. We enjoy reading though the notes everyone is leaving on this site each day. Thank you all for the cheerful and prayerful greeting you are sending.

Today marks the end of the 3rd week of us being here in the hospital. So much has happened in those 3 weeks!

Today was Tim’s bone marrow biopsy. They used some “gnarly” (Tim’s words) sedation that kept him fairly knocked out most of the day. This was not a bad thing as he hasn’t slept real well the last couple nights and really needed a couple good naps. We are very hopeful that the tests will come back “clean”.

We have officially been referred to the University of Iowa hospitals for further treatment. Not sure of any details to go with that. As we have found out with so many things, this is a marathon, not a sprint, and we often can’t see around the bend until we get closer.

Tim was able to have some actual food today, not just liquids. He did very well with it so far and we are hopeful this will help with the digestive tract issues.

PRAYER REQUESTS:

Please continue to pray for the decisions we will be making over the next couple weeks. Still many to make and some are going to be pretty big ones!

Please pray for wisdom for our doctors and care teams as they make decisions about Tim’s treatments.

Pray that we might be a testimony to all those around us. We hope that even through some of the hardest days, those around us can see the trust we have in Christ.

PRAISES:

ANOTHER GOOD DAY!!!!

That Tim was able to have some REAL food and that, so far, it has gone well. He seems to have an appetite (not always a big one) and we pray that continues.

We learned first thing this morning that Tim’s AML is complicated enough that he will eventually be referred to a bigger hospital for a stem cell transplant. That is a lot of information to digest and there will be many big decisions that will need to be made.

As for how Tim is feeling, the nausea is much improved and his energy today was much better than yesterday. He was able to get a half mile walk in and food is starting to sound really good – especially since he has been stuck on a liquid diet for nearly a week. He keeps trying to get me to sneak B-Bops french fries in here! He had to make do with a few cracker added to his tomato soup. 😁

Despite the tough news today, we still both feel peace!

PRAYER REQUESTS:

Wisdom for the many, many decisions that will need to be made. Some will be tough decisions and some will be easier. The amount of them will be overwhelming.

Tim will have his post-chemo bone marrow biopsy tomorrow. It will be several days until we get the results. Please pray for us in the waiting and that the results will be favorable.

PRAISES:

Recap: The cough is mostly gone. The gout seems to be gone. The nausea is much improved.

Cassie will be able to get insurance when Tim’s goes to COBRA. That is a weight lifted.

We continue to praise God for the wonderful care we have received. Doctors, nurses, aides, even the cleaning people and the people that deliver his meals have all been so friendly and have taken such good care of us.

Even though we have not responded to all the words of encouragement on this site, we read them every night and praise God for each of you that is taking the time to send us a note. Between those comments and the cards and other notes, we are truly blessed and amazed at the amount of people cheering Tim on!

When our kids were younger, Tim’s nephew Chris rode with us to his parents in Cedar Rapids. On that trip, he taught our kids a song:

“Oh the horse stood around with his foot on the ground (sung 4 times). Second verse, same as the first!”

This song was sung for about 2 hours in our van that night and by the time we were there, we wanted to strangle Chris! 😂 However, I was reminded of that song today because it basically doesn’t go anywhere. You simply keep singing the same thing over and over. That is what today was. Pretty much a copy and paste of yesterday. Nothing real good to report but also nothing bad to report. Tim had less energy today but it was gloomy enough that it made for some good napping, which he seemed to need today. We have decided though, that any day without setbacks is still a good day!

PRAYER REQUESTS:

Tim is still having quite a bit of trouble with diarrhea. That is not a pleasant thing to share but it has been going on for over a week and is very tiresome for Tim. Please pray that it will ease up and go away.

Emily is planning a small (our immediate family only) 1st birthday party for our grandson Wells this weekend. We thought a little time on the rooftop seeing his kids and grandkids would be beneficial for Tim. Please pray that he (and all of us) stays healthy enough for this to happen.

PRAISES:

That Tim was able to get some good naps in today. That is not always easy but was definitely much needed.